Hello,

We are the Civil Initiative for the Realization of Equal Opportunities for Children, Adolescents and Adults with Spinal Muscular Atrophy – SMA initiative. We work as a flexible team of volunteers, our team consists of people with SMA, parents, friends and partners of people with SMA, experts from different fields of research and other supporters. We’re open to cooperation with other civil initiatives and societies etc. with whom we share common values and goals.

We work in the following areas:

  • education (primary and secondary schools and faculties of Slovenian universities)
  • employment and career building
  • access to the latest and highest-quality forms of treatments and support therapies
  • full wheelchair accessibility of public buildings

Our current projects are:

  • a research on the accessibility of faculties and colleges of all Slovenian universities
  • the overall inaccessibility of primary and secondary schools and other educational challenges children and adolescents with SMA face in Slovenia
  • comments and amendments on the ZUOPP-1 (the proposal of the changes and amendments on the law for guidance of children with special needs)
  • wheelchair inaccessibility of the Trubar’s House of Literature

We encourage you to contact us with initiatives, suggestions and ideas for cooperation. We’ll get back to you as soon as possible:

smainiciativa@gmail.com